10th April 2022

Hi All,

Sorry I have disappeared for a while.  I had a setback and haven't felt myself for a while.

The IBS is so bad I am now back to taking Imoduim each day.  

I became very depressed and fatigued and had no energy for anything.  Even getting up in the mornings was hard.  Not sure why I became so depressed it really just snuck up on me.  The fatigue is a little better still have days where I get up and then end up lying on the sofa.

The Addisons has been up and down or more so its my blood pressure which seems very low again.  This might be what the fatigue is?  

The Behcets seems to be the same some days my joints ache and I find its weird in say Monday was painful hands Tuesday could be painful legs.  Its never the same each day is different.

The Dercums seems to be the same at the moment, I did have good news that I had lost 1 stone in the last 12 months.  Could do with loosing more but it is a battle when you are on steriods.

Lastly I have tried marketing my book so if anyone has any ideas on marketing?  I don't get any money unless it sells and even then only get about £1 each book sold I was hoping that this would be my income.

I do hope everyone is keeping well.  Promise to update more regularly now I feel a little more human.  Hopefully the depression has lifted a little.  I might even get back to writing.

Take care,

Ali