25th December 2020

Hi All,

Sorry it has been a while but wanted to wish everyone a Merry Christmas and hope all your dreams come true for 2021.

Well I have been busy.  I am no seeing the Medical Cannabis Clinic and gosh do I feel different...  I have cut my pain relief from 9 tablets a day to 1 or sometimes nothing a day.  Yes a still feel pain but it is more managable.  I wanted to be on this for a couple of months before I announced it to everyone.  At the moment this can be done only privately I hope as more awareness might mean it become a standard treatment from the GP.  

The Dercums has excelerated as I am now one two types of steriod due to the Addisons Disease.  My BP was so low I was almost fainting.  Thankfully although still below normal it is more managable.  Behcets is still the same I do get random pains on and off but can not be sure which conditions is affecting what.  I have noticed that my hips hurt more which is a new one to me.  

I have been working on my second book and still crafting when I can.  I still battle chronic fatigue and although I seem to sleep a bit better I get moments of brain fog and need to rest.  No running marathons yet.  I still cannot stand for too long but have been managing chair yoga.  I still use my vibration plate but can only managed a 5 minute program.  I have to keep telling my self small steps make many in the end.  

I am not sure how people have coped with Covid.  It does worry me as with 3 autoimmune diseases not sure how it would effect me and I don't want to tempt fate I am avoiding certain things and being extra careful.  I do hope everyone is okay.  If there is anything anyone needs please just contact me.  I am also a Reiki Master so if anyone needs any distance healing just let me know.

Well I am sure we are all in for a better year in 2021 after this year and for a change I will stay up and toast to the new year and hope for brighter things this coming year.  

Motto: Wake up and think this is a new day and a better day.