20th May 2018

HI All,

Well an update on my lipoedema bandage treatment it has been going well I have lost a total of 7 cm in total so far.  Although it is still bandaged up and I really hope to have the stockings fitted soon it would be a nightmare it this was during a heatwave.

The IBS is really up and down so much.  Dreadful bloated stomach and then several trips to the toilet to the point you are sore in going so much.  I feel drained when this happens as if the body is fighting itself.

I still have the chronic fatigue to which I have to have a cat nap with.  Learning to listen to your body is quite hard.  Not knowing whether a laydown or staying awake is the best thing.

I have a really sore mouth now and I am unable to put my dentures in which is really frustrating.  I desperately want to eat salads instead of mashed potatoes or soft food.  Hopefully the ulcers will heal quickly so I can get on with wearing the dentures.  I must admit I never thought I would have dentures at the age of 46. 

So apart from a mummified left leg I am plodding on.  I am studying and still looking for a job which I can do from home.  I am thinking of starting a little craft webpage which I can sell my cards and French knitted coasters. 

I have now also published my first book called Prime Poems.  One poem relates to Behcet’s Disease which I hope raises awareness on autoimmune diseases.  Hence why I have been off line recently it has been extremely busy time for me.

I also have news that I will be doing a talk / presentation about my diseases to junior doctors.  It is both scary and exciting I hope by discussing this with doctors will help other people and pass on how it affects me.

I do hope everyone is well and thank you for visiting.

Motto: Listen to your body more and try to except the changes