5th April 2018

Hi All,

Sorry meant to update everyone a few days ago but had a slight set-back. 

This is hard to explain but I have felt my heart pounding strongly in my whole chest and felt my pulse in my neck.  It is such a strange feeling and the best way to describe this is I feel like my heart has enlarged.  Of course, I went to the doctors as I have never had this before.  I have had a trace done and lots of bloods I now wait for the results.  I have suffered from panic attacks before and know this is not that so will keep everyone updated as soon as I know anything.

Well today I have my left lower leg bandaged up to help treat the lymphedema.  It is uncomfortable but hopefully this will prevent further damage and once the bandages have done their job I will have specially measured stockings. 

I have suffered chronic fatigue and great pain the last couple of weeks.  Pain has been all over at times and hard to manage.  I am hoping once the warm weather arrives I might be more stable on the pain side of things. 

I do hope everyone is as well as can be expected.  It is hard for some people to understand our issues when dealing with chronic fatigue or the pain.  It is not as simple as just being able to walk and I am a firm believer in listening to what your body tells you.  So, if you need a little cat nap in the day do so.

I have had my last dentist appointment (Yippee I made it!).  Now I have to get used to wearing my new teeth unfortunately I have a massive ulcer so have to wait for that to clear or reduce a little.  I cannot thank the dentist enough he was both reassuring and when needed to be quick I high recommend seeing him.  I am highly nervous of dentists but feel more at easy than I have before.

Well I am seeing some new consultants shortly and again will update any new news.

I have started my Craniosacral Therapy which I had to stop while having dental appointments.  I felt I did benefit from this greatly.  Will keep everyone posted.  I do think being in a room without any distractions and laying for an hour is good for the body and soul. 

Well back to elevating my mummified leg hopefully this will help too. 

Motto:  Remember even through the pain we will get to where we want it just takes longer.