13th March 2018

Hi All,

Hope you are all keeping well and thank you for your support in reading my blogs.

Well a lot has happened I have had my oral surgery now no teeth in the top and missing what was left of them.  Not able to chew food now until the new ones are in place.  

I also wanted to thank the response I have had on my first wave of letters to the surgeries that I sent.  I hope highlighting the conditions and being able to answer questions can only help in new research or treatments.  Also hopefully help other people being diagnosed earlier.

Well the Addisons is really playing up I am tanned and craving and eating salt like it's going out of fashion.  I am also full of cold sure it's the body saying too much oral surgery not good.  Thankfully that is over now just need to learn how to chew when I get my new teeth.  

Both the Behcets and Dercums have caused my much pain over the last week.  Even walking a few steps to the kitchen has been painful but I have kept going and hope that tomorrow is a better day.  

I had to give the crainianal treatment a pause as I had too many appointments and I only get care for a few hours.  I look forward to going back once the denitst is all done with.  I did feel a lot of benefit from it.

I also still have the cyclo-ssage at home.  If anyone would like to use this please let me know.  I have had bad back for years and when it plays up I go on the massage.  It has a lot of benefits too.

I am still looking for a work-from-home job which surprisingly is hard to find in Jersey.  I even placed an advert in the paper. If anyone has any ideas on this it would be greatly appreciated.

I am going to see a new consultant in the new few weeks I will keep you posted.  Hopefully some new ideas on how to manage my conditions and medication.

Well again thank you so much for your kind support.  If anyone is interest in meeting up just drop me an email.  

Motto: Don't give up tomorrow might just be a better day.