4. Jul, 2016

4th July 2016

Hi all,

Sorry have not been on here for a while but have had numerous infections amounting to doctor call outs and yet more tablets.  

Recently I decided to upload a photo of one extremely painful lump in hope to raise awareness for this.  It is on my twitter page smitten500.  I am ashamed of what has happened to my body but fed up with people thinking I am eating all the time to make this happen.  This is not true and it's very frustrating.  

Well apart from that not much else to report here now have dizzy spells the inner quakes (tremors within my body) is still happening and doctor doesn't seem to be too worried.  I am though I would love to know what is causing this.    

Of course being ill has made the conditions go in to over drive and each day I do not know where it's going to attack.  Three days ago I could hardly walk even with my stick to the point I was drag the left leg behind me.  I never know what to do or how to manage things.  Each day is a learning day.  I would love so feedback if anyone know anything?  

So on a brighter note I am now looking for a wheelchair accessible car and hopefully that way I will be able to at least meet people.  I think we should have a buddy system set up.  I feel that people meeting / talking to someone in the same boat would at least benefit from this and I would love some feedback for this if anyone is interested in this?  

I know I am lucky to have my son.  He is my rock in so many ways.  I do find it frustrating that I have to be pushed around in a wheelchair, he is amazing doing this but I do feel he shouldn't have to.  It stops us going to so many places as we have to think if there is ramps he could not push me on and is it accessible within the shop?  

Do hope all of you are okay and please feel free to message me I have also set up skype (I have not used this yet) but if you would prefer to talk through this please let me know.  

Motto: Live each day as it comes.  If we are able to do something ordinary it is extraordinary to us.