19th January 2016

Hi All,

Sorry this has been a little while and do hope all had a great Christmas and New Year.  

Unfortunately Christmas was difficult time with myself being ill and my first Christmas on our own.  There I was Christmas Eve being told that a hospital admission might be necessary to which I declined and decided to fight with antibiotics.  Thankfully I won this fight only now having to have teeth extracted tomorrow without being put to sleep.  Terrified is not the word I would use right now!

I have since found out that Addisons we should have an injection kit just in case a crisis happens.  I have spoken with several people who have this I will be asking the consultant on this 

My son has been my rock all throughout this time and I am so proud of the man he is becoming. He has his own issues and still manages to deal with other things too.

I don't know about everyone else but it is freezing and I am finding this hard.  Does anyone else have this problem and this making their condition worse?

I have also now a skype account if anyone is interested in chatting or possibly meeting up soon please let me know.  I know it is hard to leave the house at times hence the skype account at least we can reach out to each other. 

I can't thank everyone enough for just visiting this page and hopefully this has helped in some way.  Any questions please feel free to ask and I will try to help.

On the Dercum's some other suffers have mentioned that steroids is a no no (this is not an option for me as I will be on these for life).  I am still looking into this and will let you know what I find out.

I do hope all of you are keeping as well as possible and as warm as possible.

Motto: Why look down when you can look up.