8th July 2015

Sorry for the long delay in coming back but so much is happening.  I have had a good response and hope to meet people possibly one to one depending on how they feel.

Well London took its toll on me and it was a very long day.  Now I am going back to London for my appointment.  I am both scared and excited if that makes any sense?  I am having to do this privately, not really my choice but feel I have to take my health in my hands.  I have tried to request a referral but with no success.  This is my last resort so to speak.

I am now losing my balance quite easily and my legs are pretty bad at the moment.  The itching has caused me to scratch already very swollen legs.  The itch itself is like having ants crawling over your skin (yucky).  I am totally terrified of bugs too.  Again having a good sense of humour is keeping me going. 

I also want to thank 'Valley Foods for advertising my website.  I have been a customer since finding it hard to get out and shop and they have been a godsend.  Excellent customer service and I still get my shopping fix.  

I hope everyone is as well as they can be.  I am taking each day as it comes.  What with my IBS playing up as well as the balance it is like an organised event to leave the house.  Thank goodness for the garden so I can sit outside.  I don't feel like a prisoner and I see daylight, and my hobby of card making which helps take my mind off the pain.

Well hopefully fingers crossed I will be sending emails out and inviting people who have been in contact.  I am really hoping to reach all auto-immune diseases whether you are suffering from one or caring for someone with these conditions.  Everything is confidential so please do get in touch.  It can be very isolating remember you are not on your own.

Well enough now here is my motto: Don't let this disease within you take over you.  Everyday say "I will fight you every day", even if it's just a little fight.  It might be a long hill to climb but once you are at the top you will appreciate the view.