18th May 2015

Well now it's approaching Behcets Awareness Day,  

My problems never cease and now I have a leaky leg, which is leaking clear fluid.  I keep thinking "what next?"  

I hope all reading this is keeping well or as well as they can.  I have now finished my second round of antibiotics.  I still have a cough but at least the temperature has come down and I feel a little more myself.  

I now have leaflets printed in hope that I can raise more awareness for the autoimmune diseases.  I also hope that a support group can be formed.  I am willing to meet with people if they would like one-to-one meetings or offer possibly a monthly meeting.  I feel this would help other suffers to discuss different treatments and specialists.  

I have emailed the JEP in hope that they can raise awareness for the 20th May.  I will keep you all posted.

This week I hope to write a letter asking local business if they can hold some leaflets about this website on their notice boards.  If anyone reading this able to do this please email me directly to a_fromager@hotmail.com with a subject "leaflets".  

I have taken a picture of my leg just to show how extreme the swelling has become.  Whether I elevate this or sit it does not make a difference.  Any suggestion?  I have been told compression would not work.  Also I acknowledge that I am a high risk to blood clots but how would you personally tell that there is one with the leg being so swollen?  I have suffered from 2 blood clots in 2010 but didn't know until they were in my lung.  

If anyone has any suggestions or need any information I will try to find out for you please just email me.  

Motto:  I will not become the disease I will fight each day as it comes.